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| 1 | Inflammatory bowel disease patient profiles are related to specific information needs: A nationwide survey显示文摘BACKGROUND Inflammatory bowel diseases(IBD) is a heterogenous, lifelong disease, with an unpredictable and potentially progressive course, that may impose negative psychosocial impact on patients.While informed patients with chronic illness have improved adherence and outcomes, previous research showed that the majority of IBD patients receive insufficient information regarding their disease.The large heterogeneity of IBD and the wide range of information topics makes a one-size fits all knowledge resource overwhelming and cumbersome.We hypothesized that different patient profiles may have different and specific information needs, the identification of which will allow building personalized computer-based information resources in the future.AIM To evaluate the scope of disease-related knowledge among IBD patients and determine whether different patient profiles drive unique information needs.METHODS We conducted a nationwide survey addressing hospital-based IBD clinics.A Total of 571 patients completed a 28-item questionnaire, rating the amount of information received at time of diagnosis and the importance of information, as perceived by participants, for a newly diagnosed patient, and for the participants themselves, at current time.We performed an exploratory factor analysis of the crude responses aiming to create a number of representative knowledge domains(factors), and analyzed the responses of a set of 15 real-life patient profiles generated by the study team.RESULTS Participants gave low ratings for the amount of information received at disease onset(averaging 0.9/5) and high ratings for importance, both for the newly diagnosed patients(mean 4.2/5) and for the participants themselves at current time(mean 3.5/5).Factor analysis grouped responses into six informationdomains.The responses of selected profiles, compared with the rest of the participants, yielded significant associations(defined as a difference in rating of >0.5 points with a P < 0.05).Patients with active disease showed a higher interest in work-disability, stress-coping, and therapy-complications.Patients newly diagnosed at age > 50, and patients with long-standing disease(> 10 years)showed less interest in work-disability.Patients in remission with mesalamine or no therapy showed less interest in all domains except for nutrition and long-term complications.CONCLUSION We demonstrate unmet patient information needs.Analysis of various patient profiles revealed associations with specific information topics, paving the way for building patient-tailored information resources. | Saleh Daher Tawfik Khoury Ariel Benson John R Walker Oded Hammerman Ron Kedem Timna Naftali Rami Eliakim Ofer Ben-Bassat Charles N Bernstein Eran Israeli | 2019 | World Journal of Gastroenterology2019，25，30： | 3 |
| 2 | Convertible call policies : An empirical analysis of an information-signalling hypothesis显示文摘 | Natarajan A | 1987 | Journal of Financial Economics1987，19，： | 1 |
| 3 | Evaluation of models for forecasting the final cost of a project显示文摘 | OFER Z SHIX)MO G TZVI R | 2000 | International Journal of Project Management2000，31，1： | 1 |
| 4 | Convertible call policies: an empirical analysis of an information-signalling Hypothesis显示文摘 | Ofer A R Natarajan A | 1987 | Journal of Financial Ecomomics1987，，19： | 1 |
| 5 | IL-1 α and IL-1β re- cruit different myeloid cells and promote different stages of sterile inflammation显示文摘 | PELEG R YARON C OFER G | 2011 | Immunol2011，，187： | 1 |
| 6 | Corporate financial policy, information, and market expectations : an empirical investigation of dividends显示文摘 | Ofer A R Siegel D R | 1987 | The Journal of Finance1987，42，： | 1 |
| 7 | Thin film atomic layer deposition equipment for semiconductor processing显示文摘 | Ofer S Robert B C Ana R L | 2002 | Thin Solid Films2002，402，6： | 1 |
| 8 | Taxes and Capital Structrue:Evidence from Firm's Response to the Tax Reform Act of 1986 显示文摘 | Givoly D Hyan C Ofer A R Sang O | 1992 | Review of Financial Studies1992，5，2： | 1 |
| 9 | Nonlinear evolution of multimode Rayleigh-Taylorinstability in two and three dimensions显示文摘 | Shvarts D Alon U Ofer D McCrory R J Verdon C P | 1995 | Physics ofPlasmas1995，2，6： | 1 |
| 10 | Distributed energy storage 显示文摘 | Zogg R Lawrence T Ofer D | 2007 | ASHRAE Journal2007，49，90： | 1 |
| 11 | Marine macroalgae as biosorbents for cadmium and nickel in water显示文摘 | OFER R YERACHMIEL A SHMUEL Y | 2003 | Water Environment Research2003，75，3： | 1 |
| 12 | Marine macroalgae as biosorbents for cadmium and nickel in water显示文摘 | OFER R YERACHMIEL A SHMUEL Y | 2003 | Water Environment Research2003，75，3： | 1 |
| 13 | Convertible call policies: An empirical analysis of an information-signaling hypothesis显示文摘 | Ofer A R Natarajan A | 1987 | Journal of Financial Economics1987，19，1： | 1 |
| 14 | Thin film atomic layer deposition equipment for semiconductor processing显示文摘 | Ofer Sneh Robert B Clark-Phelps Ana R Londergan Jereld Winkler Thomas E Seidel | 2002 | Thin Solid Films2002，，1： | 1 |
| 15 | The information content of equity for debt swaps:an investigation of analyst forecasts of firm cash flows 显示文摘 | Israel R Ofer A R Siegel D R | 1989 | Journal of Financial Economics1989，25，2： | 1 |
| 16 | Mechanisms of biosorption of different heavy metals by brown marine macroalgae显示文摘 | OFER R YERACHMIEL A SHMUEL Y | 2004 | Bioteehnol Bioeng2004，87，4： | 1 |
| 17 | 显示文摘 | Crooks R M Wrighton M S | 1990 | J Am Chem Soc1990，112，： | 1 |
| 18 | Correcting for heteroscedasticity in tests for market timing ability 显示文摘 | Jagnriathan R Ofer A R | 1986 | Journal of Business1986，59，： | 1 |
| 19 | Dyslipidaemia in polycystie ovarian syndrome different groups, different aetiologies 显示文摘 | Dror M Itamar R Ofer Y | 1996 | J Hum Reprocl1996，11，： | 1 |
| 20 | Convertible call policies: an empirical analysis of an information-signaling hypothesis 显示文摘 | Ofer A R Natarajan A | 1987 | Journal of Financial Economics1987，19，： | 1 |
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